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Questionario
Progetto DANIELA
(in via di Definizione)
Questionario di gradimento
TSI-Tuberous Sclerosis International:
Segreteria: Mrs. P. Jaap M. den Hollander
Prins Bernhardlaan 36
3722 AG Bilthoven
THE NETHERLANDS
Tel/Fax:+31 30 2281821
http://www.stsn.nl/tsi/tsi.htm
jdenhollander@crystal.feo.hvu.nl
AUSTRALIA
ATSS (Australasian Tuberous Sclerosis Society)
Mrs Sue Pinkerton, President
34, Speers Road
North Rocks, Sidney
New South Wales 2151
AUSTRALIA
Tel.0061 2 96303147
Fax 0061 2 96303148
http://www.netspace.net.au/~atss/index.htm
atss@netspace.net.au
atss@eagles.bbs.net.au (Terence Doyle)
CANADA
TSCST (Tuberous Sclerosis Canada Sclérose Tubéreuse)
Ms Jillian DaSilva, President
2443 New Wood Drive
Oakville, Ontario L6H 5Y3
CANADA
Tel. 001 880 347 0252
Fax. 001 905 257 4778
http://www.tscst.org
info@tscst.org
CZECH REPUBLIC
Dr Borek Petrak
Lumieru 24
152 00 Praha 5
CZECH REPUBLIC
gfpraha@volny.cz
DENMARK
Mrs Pia Johansen
DFTS
Lilleskowej 33
4220 Korsor
DENMARK
tsab-lwa@post.1.tele.dk
DEUTSCHLAND
TSD (Tuberoese Sklerose Deutschland e.V.)
Dr. rer. nat. Karin Mayer
Universität Erlangen
Humangenetisches Institut
Schwabachanlage 10
D-91054 Erlangen
DEUTSCHLAND
Tel.09131 - 852319
Fax.09131 - 852332
TSD Internet site
http://www.tsdev.de
Mayer@TuberoeseSklerose.de
EIRE
Mr. & Mrs N. Manning
20 Portmarnock Park
Portmarnock
Co Dublin 6
EIRE
ESPANA
Asociacion Andaluza Estu Esclerosis Tuberosa
Alfredo Guerisoli
Trinquete 16
Urb Don Miguel
Rincon De La Victoria
Malaga ESPANA
http://www.vnet.es/estu
estu@vnet.es
FINLAND
Esko Siljamaki
Arotie/A/
SF 01820 Klaukkala
FINLAND
FRANCE
A.S.T.B.
Mme Marie-Christine de La Morlais
13, route de Villemetrie
60300 Senlis
FRANCE
Tel. / Fax. 03 44 60 97 66
Tel. / Fax. 01 48 80 60 92
http://orphanet.infobiogen.fr/associations/ASTB/ASTB.html
GREECE
TSA
Mrs Marianna Lambrou
99-101 Timotheou Street
162 - 32 Athens
GREECE
Tel. 30-1-76 60 989
Fax.30-1 -72 62 481
http://users.nni.com/aris/tsa.htm
tsa@ath.forthnet.gr
INDIA
Mr Kamlesh Shah
86 Mount Unique
62-A Pedder Road
BOMBAY 400 026
INDIA
ITALY
A.S.T. Associazione Sclerosi Tuberosa
Velia Maria Lapadula, Presidente
Via Anagnina Nuova 13 c/o Vilaggio "Eugenio Litta"
00046 GROTTAFERRATA (RM), ITALIA
Tel. / Fax. 0039 6 65024216
mobile Simona Bellagambi +393495952522
http://www.sclerosituberosa.org
info@sclerosituberosa.org
JAPAN
TS Tubasanokai
Akiko Yokohama, Secretary
c/o Toy Library
National Childrens Hospital
3-35-31 Taishido Setagaya-Ku
TOKYO 154
JAPAN
Toshiaki Sasaki
2-25-11 Mitsuidai
Hachioji City 192
TOKYO
JAPAN
sasaki-t@wf6.so-net.ne.jp
MALAYSIA
Kay Teoh
3 Lorong 16/3B
Petaling Jaya 46350
Selangor Darul Ehsan
MALAYSIA
MEXICO
Cesar & Betty Riera
Calle 37A # 370 x 28 y 30
Fracc. Montealban
Merida
Yuc
MEXICO C.P. 97000
NETHERLANDS
Mrs. Arni A. Hubbeling
Watteaustraat 4hs.
1077 ZL Amsterdam
THE NETHERLANDS
a.hubbeling@freeler.nl
http://www.stsn.nl/index.htm
info@stsn.nl
NEW ZEALAND
P.J. & A.M. Coakley
New Zealand TS Support Group
36 Salisbury Road
Birkdale
Auckland 1310
NEW ZEALAND
Tel. / Fax. 64 9 483 5392
http://www.netspace.net.au/~atss/nzts.htm
Pat.Coakley@lion-nathan.co.nz
NORWAY
NFTS (Norsk Forening for Tuberos Sklerose)
Torbjorn Hodne
N-4532 Oyslebo
NORWAY
Tel. 0047 38287627
Fax. 0047 38287676
torb-ho@online.no
Eirik Loekke
loekke@alfanett.no
POLAND
Dr Sergiusz Jozwiak
Dept of Child Neurology
Centrum Zdrowia Dziecka
A1. Dzieci Polskich 20
04-736 Warszawa
POLAND
jozwiak@czd.waw.pl
Polish TS Assn
Mr. Kazimierz Dyka
u1.Czachowskiego 23/9
27-600 Sandomierz
POLAND
LA REUNION
Bruno Maillot
ARAFASTB
13 Chemin A. Roussin-
La Bretagne
97490 SAINTE CLOTILDE
LA REUNION
ROMANIA
Dr.Simona Visan
Str.Stefan cel Mare nr.60,
Bloc 41, apt.7, sector
Bucuresti
ROMANIA
Tel. / Fax. 0040 1 2106862
visancos@mb.roknet.ro
RUSSIA
Professor Pavel A Temin & Dr Marina Dorofeeva
Department of Neurology & Epileptology
Scientific Research Institute for Pediatric & Child Surgery
Taldomskaya Street, 2
127412, Moscow
RUSSIA
Natalia Kazmina
President TSA Russia
KoloDEznaja Str. 7 - 7 - 4
107076 Moscow
RUSSIA
Tel. / Fax. 7 (095) 964 2832
mospress@glas.apc.org
SOUTH AFRICA
TS Association of South Africa
Mrs S. Olivier
PO BOX 2217
Primrose
Germiston
SOUTH AFRICA 1416
SWEDEN
SFTS (Svenska Föreningen för Tuberös Skleros)
Berit Oberg
Sten Bergmansv. 61
12146 Johanneshov
SWEDEN
Tel. / fax. 054-87 45 43
http://www.ts-sverige.com
lennart.berit@telia.com
tuberous@yahoo.se
Eva Nordin-Olson
SFTS
Ostnor 4438
792 95 MORA
SWEDEN
TURKEY
Prof. K Kutlu
Professor of Pathology
Trakya University Medical Faculty
Edirne
TURKEY
UNITED KINGDOM
TSA (Tuberous Sclerosis Association)
Tom Carter
PO Box 9644
Bromsgrove, Worcs. B61 0FP
ENGLAND
Tel.01527 871898
http://www.tuberous-sclerosis.org
international@tuberous-sclerosis.org
USA
Dr Vicky Holets Whittemore
801 Roeder Road, Suite 750
Silver Spring, MD 20910
USA
Tel. 301-562-9890
Fax. 301-562-9870
Toll free: 800-225-6872
http://www.tsalliance.org
info@tsalliance.org
YUGOSLAVIA
Professor Dusan Vranjesevic
Clinic for Child Neurology & Psychiatry
Dr. Subotica St. 6a
Belgrade
jekac@eunet.yu
Tags: Nel Mondo
info@sclerosituberosa.org
La sede nazionale AST onlus si trova a:
Grottaferrata (RM), Via Anagnina Nuova 13, c/o Villaggio "Eugenio Litta"
La sede operativa nazionale:
Fiumicino (RM), Via Oblach 36, tel./fax 06-65024216
La sede legale:
Roma, Via Ambrosini 72
Per le sedi operative regionali vedere la voce "I delegati"
Tags: La sede
